Who we are
The European Network for Ichthyosis, eni, is an international patients network run by national European patients associations.
eni is a common voice for ichthyosis patients and a partner for authorities on a European level.
Our work on joint activities is enabled by a mailing list permitting discussions, the exchange of experiences and ideas.
All European Ichthyosis patients associations are cordially invited to join eni, to present themselves on the eni web-site and to develop joint activities.
Our team and members
Eni is governed by a volunteer team of the local ichthyosis associations. The members are chosen each two years and they represent the different nationalities integrated in eni.