Who we are

The European Network for Ichthyosis, eni, is an international patients network run by national European patients associations.

eni is a common voice for ichthyosis patients and a partner for authorities on a European level.

Our work on joint activities is enabled by a mailing list permitting discussions, the exchange of experiences and ideas.

All European Ichthyosis patients associations are cordially invited to join eni, to present themselves on the eni web-site and to develop joint activities.

Our team and members

Eni is governed by a volunteer team of the local ichthyosis associations. The members are chosen each two years and they represent the different nationalities integrated in eni.

President
Mandy Aldwin-Easton
UK

Vice-president
Anne Adouze
France

CEO
Geske Wehr
Germany

Treasurer
Kirstin Kiekbusch
Germany


Belgium

Denmark

France

Finland

Germany

Italy

Norway

Poland

Portugal

Spain

Sweden

Switzerland

UK

Netherlands